"the nicest and the sweetest days are not those on which anything very splendid or wonderful or exciting happens, but just those that bring simple pleasure, following one another softly, like pearls slipping off a string."
Lucy Maud Montgomery

Tuesday, October 7, 2008

I get by with a little help from my friends...


I am speechless, well as possible as that can be. You all are simply the best. I am so overwhelmed by your concern and support, your love and encouragement. I just don't know how I would get through the day without you all ;) I have to tell you something from the bottom of my heart...there is a part of me that has always felt that I don't deserve to be cared for like this. Thank you all for being there.

I arrived bright and early at the surgery center but was not called back until 11:00. By then I was a little stressed and rather hungry. We finally went off to the operating room and I climbed up onto the table. That was pretty interesting with the one leg and the one non-working leg but I eventually got it figured out and got my i.v. and oxygen, heart monitor etc. all connected. I did get to have a little anesthesia, which I was glad for, as I was a little anxious/nauseous. The doc marked all the hot spots and proceeded to inject them and then injected the big muscle and the hip joint. It didn't take long at all...then they rolled me over onto the gurney to take me to the recovery. I knew immediately that the shots had not worked.

After my time in the recovery room and waiting for the doctor, he finally stopped by. He told me that he had done all he could for me and I needed to return to my PCP for non-narcotic pain medication. (he is by the way, an interventional pain specialist). He said he would give me a prescription for a power chair and left me with the parting words that my PCP should set me up with a counselor because I'm probably going to need something for the upcoming depression and I need to learn to live with constant pain. (again, he is an interventional pain specialist). I am sure you can imagine how upset I am...and disappointed, and pissed. I am not going down without a fight...tomorrow I see my PCP and I will insist that I am referred to a "real" pain doctor.

I will keep you updated on all of that...but for now...just for a few days...I know you'll understand if I'm not around here much. I have a lot to process. Thank you again for your kindness...I love you all.

14 comments:

  1. jojo-
    Never give up! I am sorry that things didn't go as well as hoped for yesterday. I know the disapoinment in this procedure and this dr. was very big for you. You are so strong-please remember you are loved-no matter what.
    Continuing to pray!
    Hugs
    Tracy

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  2. Wow , in honest words that both sucks and blows at the same time...
    UGH! I'm sorry you are having to deal with this.
    I havea suggestion you may not have thought of... acupuncture... now don't think I'm nuts - my husband used it to deal with his back pain, I used it to get thru menstrual cramps so bad I couldn't get out of bed so I could be off my birth control pills long enough to conceive my daughter. There are alot of secrets about Eastern medicine that are still not understood today. If you do decide to give it a try , make sure you find a licensed acupuncturist - not a fly by the pants tanning/massage/acupuncture boutique! lol:)
    HUGZ!!!!

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  3. Keeping you in my thoughts. Take all the time you need...it's more than understandable.


    Hallie

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  4. Oh Jojo, I am sorry. I too have had my problems with a interventional pain specialist. He tried to send me to a shrink also, so I no longer go to him. He is the one that wants me to have a spinal cord nerve stimulator inplanted. Did yours mention those to you? I feel so bad for you, I am so sorry. I was hoping and praying that this would give you a few days of less pain. I am here, if you need to chat, email me. You are in my thoughts and prayers and I care and also Jojo, I understand!!

    God Bless~
    Debbie

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  5. JJ, I just don't know what to say. I am MAD at that pain guy, I'm SAD that the injections didn't work, and I just wish there was something I could do or say that would really help.

    As always, JJ, take whatever time you need because we'll be here whenever it is that you get back to us. You will get through this.

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  6. NO !! I was sure the shots would work. Now I'm angry, too, at your pain doctor. I think you should demand a different doc. Take all the time away you need - we'll still be here.

    Until then - {{{jojo}}}

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  7. I havea suggestion you may not have thought of... acupuncture... now don't think I'm nuts - my husband used it to deal with his back pain.

    ReplyDelete
  8. At first I was marveled to see such a blog.Your blog is sparkling. It has a great appeal. How are U able to cope such a lot and cope such a lot. Meet me at
    http://gwb-chinese.blogspot.com/
    Waiting with curiosity. To know your innovation.

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  9. JoJo, I figured it out... It this election b.s. It's giving all of us a pain in the butt or seven. If you can get through the election...

    Seriously, try another p.m.p. They can't all be like that jackass you went to yesterday. I do know from getting injections in my back that they do sometimes miss "the spot", but sounds like his 'bedside' manner sucked. I guess he couldn't handle a little criticism i.e. you missed idiot.

    Don't give up. There are others out there and you deserve to be better treated, and, if you have it available, you might consider acupuncture. It helped my hands years ago.

    I'm with you,

    Helen

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  10. Oh Sweetie. I haven't been doing much reading of other blogs and didn't know what you are going through. You are in my prayers!

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  11. No one should have "to live with the pain." Good for you for not giving up.

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  12. Are you ok? I hope so!! Let me know!!!
    ILY

    God Bless~
    Debbie

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  13. Well, I have been on the patch for almost 3 yrs. When I was working, is when I started it. I am on 25 right now, but have been on as high as 100, which I slept 20 out of 24 hrs. I hope it works for you. It doesn't take my pain away, it takes that edge off, so I don't kill anyone...LOL. What are you starting out on? You won't feel immediate relief. Takes time to get in your body. Let me know and email me if you need anything. I have been there and I am still there, so I do understand.
    ILY

    God Bless~
    Debbie

    Is there a mattress insurance will cover??

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  14. Hey, JJ...I just wanted to stop by and say hi and let you know I'm thinking about you!

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